Abstract
The structural relations between patient experiences with information provided by hospital staff, coping behaviour and changes in self-rated health were studied in a cohort of people with chronic illness (n = 556) over a period of 2 years. A structural equation approach was applied to model cross-sectional and longitudinal effects. Positive experiences with information were cross-sectionally but not longitudinally associated with improved self-rated health. Patient experiences with information are not related to avoidance coping, but positive experiences contribute to more frequent use of supportant coping. The findings in the present study indicate that measures of patient experiences with information are not merely a reflection of patients’ health or coping behaviour. More theoretical work is required to describe the relationships between different patient reported outcomes. The insight into mechanisms underlying changes in physical and mental health in chronic illness could be further improved by evaluating the effects of specific educational and psychosocial interventions in a longitudinal design.
Similar content being viewed by others
References
PD Cleary (2003) ArticleTitleA hospitalization from hell: A patient’s perspective on quality Ann Intern Med 138 33–39 Occurrence Handle12513042
A Coulter V Entwistle D Gilbert (1999) ArticleTitleSharing decisions with patients: Is the information good enough? Br Med J 318 318–322 Occurrence Handle1:STN:280:DyaK1M7it1yrtQ%3D%3D
J Wright A Franks P Ayres K Jones T Roberts P Whitty (2002) ArticleTitlePublic health in hospitals: The missing link in health improvement J Public Health Med 24 152–155 Occurrence Handle12831081 Occurrence Handle10.1093/pubmed/24.3.152
Conrad P. The experience of illness: Recent and new directions. In: Roth JA, Conrad P (eds), The Experience and Management of Chronic Illness. Greenwich, Connecticut: Jai Press Inc. 1987: 1–31.
A Coulter R Fitzpatrick (2000) The patient’s perspective regarding appropriate health care GL Albrecht R Fitzpatrick SC Scrimshaw (Eds) Handbook of Social Studies in Health and Medicine Thousand Oaks London 454–464
J Sitzia N Wood (1997) ArticleTitlePatient satisfaction: A review of issues and concepts Soc Sci Med 45 1829–1843 Occurrence Handle9447632 Occurrence Handle1:STN:280:DyaK1c7gvV2gsQ%3D%3D Occurrence Handle10.1016/S0277-9536(97)00128-7
J Coyle (1999) ArticleTitleExploring the meaning of ‘dissatisfaction’ with health care: The importance of ‘personal identity threat’ Sociol Health Illn 21 95–124 Occurrence Handle10.1111/1467-9566.00144
G Cohen (1996) ArticleTitleAge and health status in a patient satisfaction survey Soc Sci Med 42 1085–1093 Occurrence Handle8730914 Occurrence Handle1:STN:280:DyaK283psFSrtg%3D%3D Occurrence Handle10.1016/0277-9536(95)00315-0
B Guldvog (1999) ArticleTitleCan patient satisfaction improve health among patients with angina pectoris? Int J Qual Health Care 11 233–240 Occurrence Handle10435845 Occurrence Handle1:STN:280:DyaK1Mzmt1ahsQ%3D%3D Occurrence Handle10.1093/intqhc/11.3.233
CO Larson EC Nelson D Gustafson PB Batalden (1996) ArticleTitleThe relationship between meeting patients’ information needs and their satisfaction with hospital care and general health status outcomes Int J Qual Health Care 8 447–456 Occurrence Handle9117198 Occurrence Handle1:STN:280:DyaK2s7jsFKhtA%3D%3D Occurrence Handle10.1016/S1353-4505(96)00050-6
JG Zapka RH Palmer JL Hargraves D Nerenz HS Frazier CK Warner (1995) ArticleTitleRelationships of patient satisfaction with experience of system performance and health status J Ambul Care Manage 18 73–83 Occurrence Handle10139348 Occurrence Handle1:STN:280:DyaK2M7it1yqtQ%3D%3D
JA Hall MA Milburn AM Epstein (1993) ArticleTitleA causal model of health status and satisfaction with medical care Med Care 31 84–94 Occurrence Handle8417273 Occurrence Handle1:STN:280:DyaK3s7gvVygsg%3D%3D
XS Ren L Kazis A Lee W Rogers S Pendergrass (2001) ArticleTitleHealth status and satisfaction with health care: A longitudinal study among patients served by the Veterans Health Administration Am J Med Qual 16 166–173 Occurrence Handle11591016 Occurrence Handle1:STN:280:DC%2BD3Mrktlaqtg%3D%3D
JR Greenley TB Young RA Schoenherr (1982) ArticleTitlePsychological distress and patient satisfaction Med Care 20 373–385 Occurrence Handle7078294 Occurrence Handle1:STN:280:DyaL387psVSrsg%3D%3D
JA Hall M Feldstein MD Fretwell JW Rowe AM Epstein (1990) ArticleTitleOlder patients’ health status and satisfaction with medical care in an HMO population Med Care 28 261–270 Occurrence Handle2314135 Occurrence Handle1:STN:280:DyaK3c7ptVShsg%3D%3D
RE Roberts GC Pascoe CC Attkisson (1983) ArticleTitleRelationship of service satisfaction to life satisfaction and perceived well-being Eval Program Plann 6 373–383 Occurrence Handle10267264 Occurrence Handle1:STN:280:DyaL2c3mtFOhsQ%3D%3D Occurrence Handle10.1016/0149-7189(83)90016-2
KE Covinsky GE Rosenthal MM Chren et al. (1998) ArticleTitleThe relation between health status changes and patient satisfaction in older hospitalized medical patients J Gen Intern Med 13 223–229 Occurrence Handle9565384 Occurrence Handle1:STN:280:DyaK1c3isFSmtQ%3D%3D Occurrence Handle10.1046/j.1525-1497.1998.00071.x
EA Kerr DM Smith SH Kaplan RA Hayward (2003) ArticleTitleThe association between three different measures of health status and satisfaction among patients with diabetes Med Care Res Rev 60 158–177 Occurrence Handle12800682 Occurrence Handle10.1177/1077558703060002002
GN Marshall RD Hays R Mazel (1996) ArticleTitleHealth status and satisfaction with health care: Results from the medical outcomes study J Consult Clin Psychol 64 380–390 Occurrence Handle8871422 Occurrence Handle1:STN:280:DyaK2s%2FisFWquw%3D%3D Occurrence Handle10.1037/0022-006X.64.2.380
TL Powers D Bendall (2004) ArticleTitleThe influence of time on changes in health status and patient satisfaction Health Care Manage Rev 29 240–248 Occurrence Handle15357234
D Ridder Particlede K Schreurs (2001) ArticleTitleDeveloping interventions for chronically ill patients: Is coping a helpful concept Clin Psychol Rev 21 205–240 Occurrence Handle11293366 Occurrence Handle10.1016/S0272-7358(99)00046-X
BJ Felton TA Revenson GA Hinrichsen (1984) ArticleTitleStress and coping in the explanation of psychological adjustment among chronically ill adults Soc Sci Med 18 889–898 Occurrence Handle6729517 Occurrence Handle1:STN:280:DyaL2c3isVSqtA%3D%3D Occurrence Handle10.1016/0277-9536(84)90158-8
RS Lazarus S Folkman (1984) Stress, Appraisal and Coping Springer Publishing Company New York
S Maes H Leventhal D Ridder Particlede (1996) Coping with chronic diseases M Zeidner NS Endler (Eds) Handbook of Coping: Theory, Research, Applications John Wiley & Sons New York 221–251
Crow R, Gage H, Hampson S, et al. The measurement of satisfaction with healthcare: Implications for practice from a systematic review of the literature. HTA 2002; 6.
JA Hall MA Milburn DL Roter LH Daltroy (1998) ArticleTitleWhy are sicker patients less satisfied with their medical care? Tests of two explanatory models Health Psychol 17 70–75 Occurrence Handle9459073 Occurrence Handle1:STN:280:DyaK1c7itVKqtg%3D%3D Occurrence Handle10.1037/0278-6133.17.1.70
Pettersen KI. Assessing outcomes in Norwegian Hospitals – the Norwegian Outcomes study. Qual Life Newslett 1997; 2.
JH Loge S Kaasa MJ Hjermstad TK Kvien (1998) ArticleTitleTranslation and performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthritis. I. Data quality, scaling assumptions, reliability, and construct validity J Clin Epidemiol 51 1069–1076 Occurrence Handle9817124 Occurrence Handle1:STN:280:DyaK1M%2Fjt1Sitg%3D%3D Occurrence Handle10.1016/S0895-4356(98)00098-5
AM Garratt DA Ruta MI Abdalla JK Buckingham IT Russell (1993) ArticleTitleThe SF36 health survey questionnaire: An outcome measure suitable for routine use within the NHS Br Med J 306 1440–1444 Occurrence Handle1:STN:280:DyaK3s3pvFahtA%3D%3D
CA McHorney JE Ware SuffixJr. AE Raczek (1993) ArticleTitleThe MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs Med Care 31 247–263 Occurrence Handle8450681 Occurrence Handle1:STN:280:DyaK3s7ps1antA%3D%3D
CA McHorney JE Ware SuffixJr. JF Lu CD Sherbourne (1994) ArticleTitleThe MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups Med Care 32 40–66 Occurrence Handle8277801 Occurrence Handle1:STN:280:DyaK2c7gsVeltQ%3D%3D
KI Pettersen M Veenstra B Guldvog A Kolstad (2004) ArticleTitleThe Patient Experiences Questionnaire: Development, validity and reliability Int J Qual Health Care 16 453–463 Occurrence Handle15557355 Occurrence Handle10.1093/intqhc/mzh074
M Veenstra D Hofoss (2003) ArticleTitlePatient experiences with information in a hospital setting: A multilevel approach Med Care 41 490–499 Occurrence Handle12665713 Occurrence Handle10.1097/00005650-200304000-00005
A Jalowiec SP Murphy MJ Powers (1984) ArticleTitlePsychometric assessment of the Jalowiec Coping Scale Nurs Res 33 157–161 Occurrence Handle6563533 Occurrence Handle1:STN:280:DyaL2c3itFCnsQ%3D%3D
A Wahl BR Hanestad I Wiklund T Moum (1999) ArticleTitleCoping and quality of life in patients with psoriasis Qual Life Res 8 427–433 Occurrence Handle10474284 Occurrence Handle1:STN:280:DyaK1MvgtlCqsA%3D%3D Occurrence Handle10.1023/A:1008944108101
A Wahl T Moum BR Hanestad I Wiklund MH Kalfoss (1999) ArticleTitleAdapting the Jalowiec coping scale in Norwegian adult psoriasis patients Qual Life Res 8 435–445 Occurrence Handle10474285 Occurrence Handle1:STN:280:DyaK1MvgtlCqsQ%3D%3D Occurrence Handle10.1023/A:1008995905936
A Cronqvist B Klang H Bjorvell (1997) ArticleTitleThe use and efficacy of coping strategies and coping styles in a Swedish sample Qual Life Res 6 87–96 Occurrence Handle9062446 Occurrence Handle1:STN:280:DyaK2s3hs1Wlug%3D%3D Occurrence Handle10.1023/A:1026425730325
KA Bollen (1989) Structural Equations with Latent Variables EditionNumber1 John Wiley & Sons New York
SE Finkel (1995) Causal Analysis with Panel Data Sage London, Thousand Oaks, CA
D Zapf C Dormann M Frese (1996) ArticleTitleLongitudinal studies in organizational stress research: A review of the literature with reference to methodological issues J Occup Health Psychol 1 145–169 Occurrence Handle9547043 Occurrence Handle1:STN:280:DyaK1c7nslKksA%3D%3D Occurrence Handle10.1037/1076-8998.1.2.145
SD Keller JEJ Ware PM Bentler et al. (1998) ArticleTitleUse of structural equation modeling to test the construct validity of the SF-36 Health Survey in ten countries: Results from the IQOLA Project. International Quality of Life Assessment J Clin Epidemiol 51 1179–1188 Occurrence Handle9817136 Occurrence Handle1:STN:280:DyaK1M%2Fjt1ShtA%3D%3D Occurrence Handle10.1016/S0895-4356(98)00110-3
RD Hays GN Marshall EY Wang CD Sherbourne (1994) ArticleTitleFour-year cross-lagged associations between physical and mental health in the Medical Outcomes Study J Consult Clin Psychol 62 441–449 Occurrence Handle8063971 Occurrence Handle1:STN:280:DyaK2czkt1Gntw%3D%3D Occurrence Handle10.1037/0022-006X.62.3.441
L Wang X Fan VL Willson (1996) ArticleTitleEffects of nonnormal data on parameter estimates and fit indices for a model with latent and manifest variables: An empirical study Struct Equat Model 3 228–247 Occurrence Handle10.1080/10705519609540042
JC Loehlin (1998) Latent Variable Models. An introduction to Factor, Path and Structural Analysis EditionNumber3 Lawrence Erlbaum Associates Mahwah, New Jersey
GH Maassen AB Bakker (2001) ArticleTitleSuppressor variables in path models Sociol Methods Res 30 241–270
A Steptoe I Sutcliffe B Allen C Coombes (1991) ArticleTitleSatisfaction with communication, medical knowledge, and coping style in patients with metastatic cancer Soc Sci Med 32 627–632 Occurrence Handle2035038 Occurrence Handle1:STN:280:DyaK3M3ktVaqtA%3D%3D Occurrence Handle10.1016/0277-9536(91)90141-X
D Armstrong (1991) ArticleTitleWhat do patients want Br Med J 303 261–262 Occurrence Handle1:STN:280:DyaK3Mzmtl2ntg%3D%3D Occurrence Handle10.1136/bmj.303.6797.261
MR Somerfield RR McCrae (2000) ArticleTitleStress and coping research. Methodological challenges, theoretical advances, and clinical applications Am Psychol 55 620–625 Occurrence Handle10892204 Occurrence Handle1:STN:280:DC%2BD3czltVWhtw%3D%3D Occurrence Handle10.1037/0003-066X.55.6.620
AA Stone MA Greenberg E Kennedy-Moore MG Newman (1991) ArticleTitleSelf-report, situation-specific coping questionnaires: What are they measuring J Pers Soc Psychol 61 648–658 Occurrence Handle1960656 Occurrence Handle1:STN:280:DyaK38%2FntFylug%3D%3D Occurrence Handle10.1037/0022-3514.61.4.648
KA Bollen R Lennox (1991) ArticleTitleConventional wisdom on measurement: A structural equation perspective Psychol Bull 110 305–314 Occurrence Handle10.1037/0033-2909.110.2.305
PM Fayers DJ Hand K Bjordal M Groenvold (1997) ArticleTitleCausal indicators in quality of life research Qual Life Res 6 393–406 Occurrence Handle9290306 Occurrence Handle1:STN:280:DyaK2svjsFKgsw%3D%3D Occurrence Handle10.1023/A:1018491512095
PM Fayers DJ Hand (1997) ArticleTitleFactor analysis, causal indicators and quality of life Qual Life Res 6 139–150 Occurrence Handle9161114 Occurrence Handle1:STN:280:DyaK2szgsVyisg%3D%3D
JC Coyne MW Racioppo (2000) ArticleTitleNever the twain shall meet? Closing the gap between coping research and clinical intervention research Am Psychol 55 655–664 Occurrence Handle10892208 Occurrence Handle1:STN:280:DC%2BD3czltVWhuw%3D%3D Occurrence Handle10.1037/0003-066X.55.6.655
DL Fairclough (2005) Analysing studies with missing data PM Fayers RD Hays (Eds) Assessing Quality of Life in Clinical Trials Oxford University Press New York 179–194
MA Sprangers CE Schwartz (1999) ArticleTitleIntegrating response shift into health-related quality of life research: A theoretical model Soc Sci Med 48 1507–1515 Occurrence Handle10400253 Occurrence Handle1:STN:280:DyaK1MzisFynsg%3D%3D Occurrence Handle10.1016/S0277-9536(99)00045-3
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Veenstra, M., Moum, T. & Garratt, A.M. Patient experiences with information in a hospital setting: Associations with coping and self-rated health in chronic illness. Qual Life Res 15, 967–978 (2006). https://doi.org/10.1007/s11136-006-0043-7
Accepted:
Issue Date:
DOI: https://doi.org/10.1007/s11136-006-0043-7