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Feasibility of Parent Training via Telehealth for Children with Autism Spectrum Disorder and Disruptive Behavior: A Demonstration Pilot

  • S.I. : Parenting Children with ASD
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Abstract

Telehealth is a potential solution to limited access to specialized services for children with autism spectrum disorder (ASD) in rural areas. We conducted a feasibility trial of parent training with children ages 3–8 with ASD and disruptive behavior from rural communities. Fourteen children (mean age 5.8 ± 1.7) from four telehealth sites enrolled. Thirteen families (92.9%) completed treatment, with 91.6% of core sessions attended. Therapists attained 98% fidelity to the manual and 93% of expected outcome measures were collected at week 24. Eleven of 14 (78.6%) participants were rated as much/very much improved. Parent training via telehealth was acceptable to parents and treatment could be delivered reliably by therapists. Preliminary efficacy findings suggests further study is justified.

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References

  • Aman, M. G., & Singh, N. N. (2017). Aberrant behavior checklist (ABC-2) (2nd ed.). East Aurora, NY: Slosson Publishing.

    Google Scholar 

  • Aman, M. G., McDougle, C. J., Scahill, L., Handen, B., Arnold, L. E., Johnson, C., et al. (2009). Medication and parent training in children with pervasive developmental disorders and serious behavior problems: Results from a randomized clinical trial. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 1143–1154.

    Article  PubMed  Google Scholar 

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5 (5th ed.). Washington, DC: American Psychiatric Association.

    Book  Google Scholar 

  • Arnold, L. E., Vitiello, B., McDougle, C., Scahill, L., Shah, B., Gonzalez, N. M., et al. (2003). Parent-defined target symptoms respond to risperidone in RUPP autism study: Customer approach to clinical trials. Journal of the American Academy of Child and Adolescent Psychiatry, 42(12), 1443–14450.

    Article  PubMed  Google Scholar 

  • Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., et al. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. JAMA: The Journal of the American Medical Association, 313(15), 1524–1533.

    Article  PubMed  Google Scholar 

  • Belfer, M. L., & Saxena, S. (2006). WHO Child Atlas Project. Lancet, 367, 551–552.

    Article  PubMed  Google Scholar 

  • Boisvert, M., Lang, R., Andrianopoulos, M., & Bocardin, M. L. (2010). Telepractice in the assessment and treatment of individuals with autism spectrum disorders: A systematic review. Developmental Neurorehabilitation, 13, 423–432.

    Article  PubMed  Google Scholar 

  • Centers for Disease Control and Prevention (CDC). (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summary, 63, 1–21.

    Google Scholar 

  • Chowdhury, M., Aman, M. G., Lecavalier, L., Smith, T., Johnson, C., Swiezy, N., et al. (2016). Factor structure and psychometric properties of the Home Situations Questionnaire for autism spectrum disorder: The Home Situations Questionnaire—Autism Spectrum Disorder. Autism: The International Journal of Research and Practice, 20(5), 528–537.

    Article  Google Scholar 

  • Corsello, C., Hus, V., Pickles, A., Risi, S., Cook, E. H., Leventhal, B. L., & Lord, C. (2007). Between a ROC and a hard place: Decision making and making decisions about using the SCQ. Journal of Child Psychology and Psychiatry, 49(9), 932–940.

    Article  Google Scholar 

  • Corsello, C., Leventhal, B., & Cook, L. (2003). A screening instrument for autism spectrum disorders. Poster session presented at the biennial meeting of the Society for Research in Child Development, Tampa Bay, FL.

  • Dorsey, R. E., & Topol, E. J. (2016). State of telehealth. New England Journal of Medicine, 375, 154–161.

    Article  PubMed  Google Scholar 

  • Dudding, C. C. (2009). Digital videoconferencing applications across the disciplines. Communication Disorders Quarterly, 30, 178–182.

    Article  Google Scholar 

  • Elsabbaugh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., et al. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.

    Article  Google Scholar 

  • Guy, W. (1976). ECDEU assessment manual for psychopharmacology: publication ADM 76–338 (pp. 218–222). Washington, DC: US Department of Health, Education, and Welfare.

    Google Scholar 

  • Hartley, S. L., Sikora, D. M., & McCoy, R. (2008). Prevalence and risk factors of maladaptive behavior in young children with autistic disorder. Journal of Intellectual Disability Research, 52, 819–829.

    Article  PubMed  PubMed Central  Google Scholar 

  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.

    Article  PubMed  Google Scholar 

  • Ingersoll, B., & Berger, N. I. (2015). Parent engagement with a telehealth-based parent-mediated intervention program for children with autism spectrum disorders: Predictors of program use and parent outcomes. Journal of Medical Internet and Research, 17(10), e227.

    Article  Google Scholar 

  • Ingersoll, B., Wainer, A. L., Berger, N. I., Pickard, K. E., & Bonter, N. (2016). Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: A pilot RCT. Journal of Autism and Developmental Disorders, 46(7), 2275–2284.

    Article  PubMed  Google Scholar 

  • Kaat, J. J., Lecavalier, L., & Aman, M. G. (2014). Validity of the aberrant behavior checklist in children with autism spectrum disorder. Journal of Autism and Developmental Disabilties, 44, 1103–1106.

    Article  Google Scholar 

  • Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.

    Article  PubMed  Google Scholar 

  • Lee, J. F., Schieltz, K. M., Suess, A. N., Wacker, D. P., Romani, P. W., Lindgren, S. D., Kopelman, T. G., & Padilla-Dalmau, Y. C. (2015). Guidelines for developing telehealth services and troubleshooting problems with telehealth technology when coaching parents to conduct functional analyses and functional communication training in their homes. Behavior Analysis in Practice, 8(2), 190–200.

    Article  PubMed  Google Scholar 

  • Lindgren, S., Wacker, D., Suess, A., Schieltz, K., Pelzel, K., Kopelman, T., et al. (2016). Telehealth and autism: Treating challenging behavior at lower cost. Pediatrics, 137(Suppl 2), S167–S175.

    Article  PubMed  PubMed Central  Google Scholar 

  • Lord, C., Rutter, M., Di Lavore, P. C., & Risi, S. (2008). Autism diagnostic observation schedule manual. Los Angeles: Western Psychological Service.

    Google Scholar 

  • Lord, C., Rutter, M., Di Lavore, P. C., Risi, S., & Gotham, K. (2012). ADOS-2: autism diagnostic observation schedule. Los Angeles: Western Psychological Service.

    Google Scholar 

  • Maskey, M., Warnel, F., Parr, J. R., Le Couter, A., & McConachie, H. (2013). Emotional and behavioural problems in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 851–859.

    Article  PubMed  Google Scholar 

  • Mazurek, M. O., Kanne, S. M., & Wodka, E. L. (2013). Physical aggression in children and adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 455–465.

    Article  Google Scholar 

  • Mullen, E. J. (1995). Mullen scales of early learning. Bloomington, MN: Pearson Assessments.

    Google Scholar 

  • Pickard, K. E., Wainer, A. L., Bailey, K. M., & Ingersoll, B. R. (2016). A mixed-method evaluation of the feasibility and acceptability of a telehealth-based parent-mediated intervention for children with autism spectrum disorder. Autism: The International Journal of Research and Practice, 20(7), 845–855.

    Article  Google Scholar 

  • Research Units on Pediatric Psychopharmacology Autism Network. (2002). Risperidone in children with autism and serious behavioral problems. The New England Journal of Medicine, 347, 314–321.

    Article  Google Scholar 

  • Research Units on Pediatric Psychopharmacology Autism Network (2007). A pilot study of parent management training in children with pervasive developmental disorder. Behavioral Interventions, 22, 179–199.

    Article  Google Scholar 

  • Roid, G. (2003). Stanford-Binet intelligence scales: Fifth Edition (SB-5). Los Angeles, CA: Western Psychological Services.

    Google Scholar 

  • Rutter, M., Bailey, A., & Lord, C. (2003). The social communication questionnaire. Los Angeles, CA: Western Psychological Services.

    Google Scholar 

  • Scahill, L., Bearss, K., Lecavalier, L., Smith, T., Swiezy, N., Aman, M., et al. (2016). Effect of parent training on adaptive behavior in children with autism spectrum disorder and disruptive behavior: Results of a randomized trial. Journal of the American Academy of Child and Adolescent Psychiatry, 55(7), 602–609.

    Article  PubMed  Google Scholar 

  • Sparrow, S. S., Ciccetti, D. V., & Balla, D. A. (2005). Vineland II: Vineland adaptive behavior Scales, Second Edition, survey forms manual. Circle Pines, MN: AGS Publishing.

    Google Scholar 

  • Suess, A. N., Romani, P. W., Wacker, D. P., Dyson, S. M., Kuhle, J. L., Lee, J. F., et al. (2014). Evaluating the treatment fidelity of parents who conduct in-home functional communication training with coaching via telehealth. Journal of Behavioral Education, 23, 34–59.

    Article  Google Scholar 

  • Suess, A. N., Wacker, D. P., Schwartz, J. E., Lustig, N., & Detrick, J. (2016). Preliminary evidence on the use of telehealth in an outpatient behavior clinic. Journal of Applied Behavior Analysis, 49(3), 686–692

    Article  PubMed  Google Scholar 

  • Vismara, L. A., McCormick, C., Young, G. S., Nadhan, A., & Monlux, K. (2013). Preliminary findings of a telehealth approach to parent training in autism. Journal of Autism and Developmental Disorders, 43(12), 2953–2969.

    Article  PubMed  Google Scholar 

  • Vismara, L. A., Young, G. S., & Rogers, S. J. (2012). Telehealth for expanding the reach of early autism training to parents. Autism Research and Treatment. https://doi.org/10.1155/2012/121878.

    PubMed  PubMed Central  Google Scholar 

  • Wacker, D. P., Lee, J. F., Dalmau, Y. C. P., Kopelman, T. G., Lindgren, S. D., Kuhle, J., et al (2013a). Conducting functional communication training via telehealth to reduce the problem behavior of young children with autism. Journal of Developmental and Physical Disabilities, 25(1), 35–48.

    Article  PubMed  Google Scholar 

  • Wacker, D. P., Lee, J. F., Dalmau, Y. C., Kopelman, T. G., Lindgren, S. D., Kuhle, J., et al. (2013b). Conducting functional analyses of problem behavior via telehealth. Journal of Applied Behavior Analysis, 46, 31–46.

    Article  PubMed  PubMed Central  Google Scholar 

  • Wainer, A. L., & Ingersoll, B. R. (2015). Increasing access to an ASD imitation intervention via a telehealth parent training program. Journal of Autism and Developmental Disorders, 45(12), 3877–3890.

    Article  PubMed  Google Scholar 

  • Weersing, V. R. (2005). Benchmarking the effectiveness of psychotherapy: Program evaluation as a component of evidence-based practice. Journal of the American Academy of Child & Adolescent Psychiatry, 44, 1058–1106.

    Article  Google Scholar 

  • World Health Organization (2007). Global resources for persons with intellectual disabilities. Retrieved 22 October 2012 http://who.int/metnal_health/evidence/atlas_id_2007.pdf.

  • Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., & Blumberg, S. J. (2015). Estimated Prevalence of Autism and Other Developmental Disabilities Following Questionnaire Changes in the 2014 National Health Interview Survey. National Health Statistics Reports, 87, 1–21.

    Google Scholar 

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Acknowledgements

The authors thank Felissa Goldstein, MD for her for support of this project. This publication was made possible by the following grants: the National Institute of Mental Health NIMH R01 MH081148 (Principal investigator: L. Scahill); the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number UL1TR000454. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

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Contributions

KB contibuted to concept/design, acquisition of data, analysis/interpretation, drafting of manuscript, critical revision. TLB contibuted to acquisition of data, analysis/interpretation, drafting, revision. SAC contibuted to acquisition of dta, analysis/interpretation, drafting, revision. VP contibuted to analysis/interpretation, drafting, revision. SEG contibuted to analysis/interpretation, drafting, revision. CC contibuted to concept design, acquisition, drafting, revision. LS contibuted to concept/design, acquisition, analysis/interpretation, drafting, revision.

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Correspondence to Karen Bearss.

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Conflict of interest

Dr. Scahill serves as a consultant for Neuren, Coronado, Roche, MedAdvante, and Shire. Drs. Bearss, Burrell, Postorino, Crooks, Mr. Gillespie and Ms. Challa have no relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript.

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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from parents or legal guardians of all participants included in the study.

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Bearss, K., Burrell, T.L., Challa, S.A. et al. Feasibility of Parent Training via Telehealth for Children with Autism Spectrum Disorder and Disruptive Behavior: A Demonstration Pilot. J Autism Dev Disord 48, 1020–1030 (2018). https://doi.org/10.1007/s10803-017-3363-2

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  • DOI: https://doi.org/10.1007/s10803-017-3363-2

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