Abstract
Participatory health research is practiced in many countries around the world, drawing from different traditions which are based in various cultures and time periods. In spite of the wide variation in theory and practice, the different traditions show remarkable similarities. This chapter identifies 11 common principles based on the first position paper of the International Collaboration for Participatory Health Research (ICPHR). References to publications from various countries serve to illustrate each of the 11 criteria.
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsReferences
ATHENA Network, & Global Coalition on Women and AIDS (GCWA). (2013) Building women’s global meaningful participation in the high level meeting on AIDS. http://www.athenanetwork.org/assets/files/HLM/AP_Factsheet.pdf.
Bassey, M. (2001). A solution to the problem of generalisation in educational research: Fuzzy prediction. Oxford Review of Education, 27(1), 5–22.
Blackstock, K. L., Kelly, G. J., & Horsey, B. L. (2007). Developing and applying a framework to evaluate participatory research for sustainability. Ecological Economics, 60(4), 726–742.
Brandão, C. R. (Org.) (1987). Repensando a pesquisa participante. 3 ed. São Paulo: Brasiliense.
Brito, I. (2008). Intervenção de conscientização para prevenção da brucelose em área endémica. Tese de Doutoramento em Ciências de Enfermagem, Instituto de Ciências Biomédicas Abel Salazar ICBAS.
Cargo, M., & Mercer, S. L. (2008). The value and challenges of participatory research: Strengthening its practice. Annual Review of Public Health, 29, 325–350.
Conchelos, G., & Kassam, Y. (1981). A brief review of critical opinions and responses on issues facing participatory research. Convergence, 14(3), 52.
Cook, T. (2009). The purpose of mess in action research: Building rigour through a messy turn. Educational Action Research, 17(2), 277–291.
Cornwall, A. (2008). Unpacking “Participation” models, meanings and practices. Community Development Journal, 43(3), 269–283.
Cropper, S., Porter, A., Williams, G., Carlisle, S., Moore, R., O’Neill, M., Roberts, C., & Snooks, H. (2010). Community health and wellbeing. Action research on inequalities. Bristol: Policy Press.
Dadds, M. (2008). Empathetic validity in practitioner research. Educational Action Research, 16(2), 279–290.
Denzin, N. K., & Lincoln, Y. S. (Eds.). (2011). The Sage handbook of qualitative research. London: Sage.
Department of Health (DoH). (1999). Patient and public involvement in the NHS. London: Department of Health.
Department of Health (DoH). (2006). Best research for best health: A new national health research strategy. London: DH Publications.
Edwards, K., Lund, C., & Gibson, N. (2008). Validity: Expecting the unexpected in community-based research. Pimatisiwin A Journal of Aboriginal and Indigenous Community Health, 6(3), 17–29.
Fals-Borda, O., & Rahman, M. (Eds.). (1991). Action and knowledge. Breaking the monopoly with participatory action research. New York: Apex.
Freire, P. (1970). Pedagogy of the oppressed. New York: Herder & Herder.
Goldberger, N. R., Tanile, J. M., Clinchy, B. M., & Belenky, M. F. (Eds.). (1996). Knowledge, difference and power: Essays inspired by women’s ways of knowing. New York: Basic Books.
Greenwood, D. J., & Levin, M. (2005). Reform of the social sciences and of universities through action research. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (3rd ed., pp. 43–64). Thousand Oaks: Sage.
Guba, E. G., & Lincoln, Y. S. (2005). Paradigmatic controversies, contradictions, and emerging confluences. In N. K. Denzin & Y. S. Lincoln (Eds.), Sage handbook of qualitative research (pp. 191–215). London: Sage Publications.
Hart, E., & Bond, M. (1995). Action research for health & social care. London: Open University.
Institute of Medicine (IOM). (2009). Initial national priorities for comparative effectiveness research. Washington, DC: The National Academy Press.
International Collaboration for Participatory Health Research (ICPHR). (2013). Position paper 1: What is participatory health research? Version: May 2013. Berlin: International Collaboration for Participatory Health Research.
International Planned Parenthood Federation (IPPF), The Joint United Nations Programme on HIV/AIDS (UNAIDS), Global Network of People living with HIV/AIDS (GNP+), International Community of Women living with HIV/AIDS (ICW). (2013). The people living with HIV stigma index. http://www.stigmaindex.org/.
Ismail, S. (2009). Participatory health research. international observatory on health research systems. Cambridge: RAND Europe.
Israel, B. A., Schulz, A. J., Parker, E. A., & Becker, A. B. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19(1), 173–202.
Israel, B. A., Schulz, A. J., Parker, E. A., Becker, A. B., Allen, A. J., & Guzman, J. R. (2003). Critical issues in developing and following community-based participatory research principles. In M. Minkler & N. Wallerstein (Eds.), Community-based participatory research for health (pp. 56–73). San Francisco: Jossey-Bass.
Jagosh, J., Pluye, P., Macaulay, A. C., Salsberg, J., Henderson, J., Sirett, E., Bush, P. L., Seller, R., Wong, G., Greenhalgh, T., Cargo, M., Herbert, C. P., Seifer, S. D., & Green, L. W. (2011). Assessing the outcomes of participatory research: Protocol for identifying, selecting, appraising and synthesizing the literature for realist review. Implementation Science, 6(1), 24.
Jagosh, J., Macaulay, A. C., Pluye, P., Salsberg, J., Bush, P. L., Henderson, J., Sirett, E., Wong, G., Cargo, M., Herbert, C. P., Seifer, S. D., Green, L. W., & Greenhalgh, T. (2012). Uncovering the benefits of participatory research: Implications of a realist review for health research and practice. The Milbank Quarterly, 90(2), 311–346.
Johansson, A. W., & Lindhult, E. (2008). Emancipation or workability? Critical versus pragmatic scientific orientation in action research. Action Research, 6(1), 95–115.
Kuhn, T. S. (2012). The structure of scientific revolutions. Chicago: University of Chicago press.
Lather, P. (1986). Research as practice. Harvard Educational Review, 55(3), 290–300.
Ledwith, M., & Springett, J. (2010). Participatory practice. Community-based action for transformative change. Bristol: The Policy Press.
Lukesch, H., & Zecha, G. (1978). Neue Handlungsforschung? Programm und Praxis gesellschaftskritischer Sozialforschung. Soziale Welt, 29, 26–43.
Macaulay, A., Commanda, L., Freeman, W. L., Gibson, N., McCabe, M., Robbins, C., & Twohig, P. (1999). Responsible research with communities: Participatory research in primary care. British Medical Journal, 319, 774–778.
Macaulay, A. C., Jagosh, J., Seller, R., Henderson, J., Cargo, M., Greenhalgh, T., Wong, G., Salsberg, J., Green, L. W., Herbert, C. P., & Pluye, P. (2011). Assessing the benefits of participatory research: A rationale for a realist review. Global Health Promotion, 18(2), 45–48.
Mellor, N. (1999). From exploring practice to exploring inquiry: A practitioner researcher’s experience. PhD thesis. Newcastle: University of Northumbria.
Mercer, G. (2002). Emancipatory disability research. In C. Barnes, M. Oliver, & L. Barton (Eds.), Disability studies today (pp. 228–249). Cambridge: Blackwells.
Mezirow, J., et al. (1990). Fostering critical reflection in adulthood. A guide to transformational and emancipatory learning. San Francisco: Jossey-Bass.
Minkler, M., & Wallerstein, N. (2008). Community-based participatory research for health: From process to outcome. San Francisco: Jossey-Bass.
National Health and Medical Research Council & Consumers’ Health Forum of Australia. (2002). Statement on consumer and community participation in health and medical research. Canberra: Commonwealth of Australia.
Nutbeam, D (2000) Health Literacy as a Public Health Goal: A Challenge for Contemporary Health Education and Communication Strategies into the 21st Century. Health Promotion International; 15(3): 259–267.
Onwuegbuzie, A. J., Johnson, R. B., & Collins, K. M. (2009). Call for mixed analysis: A philosophical framework for combining qualitative and quantitative approaches. International Journal of Multiple Research Approaches, 3(2), 114–139.
Reason, P., & Bradbury, H. (2001). Handbook of action research: Participative inquiry and practice. London: Sage.
Reason, P., & Bradbury, H. (Eds.). (2008). Handbook of action research (2nd ed.). Thousand Oaks: Sage.
Rifkin, S. B. (1996). Paradigms lost: Toward a new understanding of community participation in health programmes. Acta Tropica, 61(2), 79–92.
Roman, L. G., & Apple, M. W. (1990). Is naturalism a move away from positivism? Materialist and feminist approaches to subjectivity in ethnographic research. In E. W. Eisner & A. Peshkin (Eds.), Qualitative inquiry in education (pp. 38–73). New York: Teachers’ College Press.
Schön, D. (1983). The reflective practitioner. How professionals think in action. London: Maurice Temple Smith Ltd.
Smithies, J., & Webster, G. (1998). Community involvement in health. From passive recipients to active participants. Aldershot: Ashgate.
Sohng, S. S. L. (1995). Participatory research and community organizing. Working paper presented at the New Social Movement and Community Organizing Conference, University of Washington, Seattle, WA. November 1–3, 1995.
Stoecker, R. (2013). Research methods for community change: A project-based approach. Thousand Oaks: Sage.
von Unger, H., Block, M., & Wright, M. T. (2007). Aktionsforschung im deutschsprachigen Raum. Zur Geschichte und Aktualität eines kontroversen Ansatzes aus Public Health Sicht, der Reihe ‘Discussion Papers’. Berlin: Wissenschaftszentrum Berlin für Sozialforschung Berlin.
Viswanathan, M., Ammerman, A., Eng, E., Gartlehner, G., Lohr, K. N., Griffith, D., Rhodes, S., Samuel-Hodge, C., Maty, S., Lux, L., Webb, L., Sutton, S. F., Swinson, T., Jackman, A., & Whitener, L. (2004). Community-based participatory research: Assessing the evidence, Summary, Evidence Report/Technology Assessment: Number 99. AHRQ Publication Number 04-E022-1, August 2004. Rockville: Agency for Healthcare Research and Quality.
Von Unger, H. (2012). Participatory health research with immigrant communities in Germany. International Journal of Action Research, 8(3), 266–287.
Waterman, H., Tillen, D., Dickson, R., & de Koning, K. (2001). Action research: A systematic review and guidance for assessment. Health Technology Assessment, 5(23), 1–166.
Whitelaw, S., Beattie, A., Balogh, R., & Watson, J. (2003). A review of the nature of action research. Cardiff: Welsh Assembly Government.
Winter, R. (2002). Truth or fiction: Problems of validity and authenticity in narratives of action research. Educational Action Research, 10(1), 143–154.
Wright, M. T. (Ed.). (2010). Partizipative Qualitätsentwicklung in der Gesundheitsförderung und Prävention. Bern: Hans-Huber.
Wright, M. T. (2012). Partizipation in der Praxis: die Herausforderung einer kritisch reflektierten Professionalität. In R. Rosenbrock & S. Hartung (Eds.), Partizipation und Gesundheit (pp. 91–101). Bern: Hans-Huber.
Wright, M. T. (2016). Partizipative Gesundheitsforschung. In Bundeszentrale für gesundheitliche Aufklärung (BZgA), Leitbegriffe der Gesundheitsförderung. http://www.bzga.de/leitbegriffe/?id=angebote&idx=273.
Wright, M. T., Roche, B., von Unger, H., Block, M., & Gardner, B. (2009). A call for an international collaboration on participatory research for health. Health Promotion International, 25(1), 115–122.
Wright, M. T., von Unger, H., & Block, M. (2010a). Lokales Wissen, lokale Theorie und lokale Evidenz für die Prävention und Gesundheitsförderung. In M. T. Wright (Ed.)., (2010) Partizipative Qualitätsentwicklung in der Gesundheitsförderung und Prävention (pp. 53–74). Hans-Huber: Bern.
Wright, M. T., Gardner, B., Roche, B., von Unger, H., & Ainlay, C. (2010b). Building an international collaboration on participatory health research. Progress in Community Health Partnerships: Research, Education, and Action, 4(1), 31–36.
Wright, M. T., Kilian, H., & Brandes, S. (2013). Praxisbasierte Evidenz in der Prävention und Gesundheitsförderung bei sozial Benachteiligten. Das Gesundheitswesen. https://doi.org/10.1007/s00103-012-1628-7.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2018 Springer International Publishing AG, part of Springer Nature
About this chapter
Cite this chapter
Wright, M.T., Springett, J., Kongats, K. (2018). What Is Participatory Health Research?. In: Wright, M., Kongats, K. (eds) Participatory Health Research. Springer, Cham. https://doi.org/10.1007/978-3-319-92177-8_1
Download citation
DOI: https://doi.org/10.1007/978-3-319-92177-8_1
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-92176-1
Online ISBN: 978-3-319-92177-8
eBook Packages: MedicineMedicine (R0)