Abstract
The quality of life at the end of life and the quality of death are dependent on many physical and spiritual issues. How aggressive to be in addressing the problems is complex and dependent on cultural and personal beliefs.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
Abbott CH, Prigerson HG, Maciejegewski PK (2015) The influence of patients quality of life at the end of life on bereaved caregiver suicidal ideation. J Pain Symptom Manage 48:459–464
Balboni TA, Balboni M, Enzinger AC et al (2013) Provision of religious support to patients with advanced cancer by religious communities and association with medical care at the end of life. JAMA Intern Med 173:1109–1117
Balducci L (2008) And a time to die. J Med Person 6:99–103
Balducci L (2011) Suffering and spirituality: analysis of living experiences. J Pain Symptom Manage 42:479–486
Balducci L (2012) Death and dying: what the patients want. Ann Oncol 23(Suppl 3):56–61
Balducci L, Fossa SD (2013) Rehabilitation of older cancer patients. Acta Oncol 52:233–238
Balducci L, Hardy C (1987) Cancer and nutrition: a review. Compr Ther 13:60–69
Balducci L, Mayer R (2001) spirituality and medicine: a proposal. Cancer Control 8:368–376
Black B, Herr K, Fine P et al (2011) The relationship among pain, non pain symptoms, and quality of life measures in older patients with cancer. Pain Med 12:880–889
Boyle J (2004) Medical ethics and double effect: the case of terminal sedation. Theor Med Bioeth 25:51–60
Byock I (1997) The prospective of death at the end of life. Riverhead book, New York
Cacciatore J, Thieleman K (2014) We rise out of the cradle into the grave: an ethnographic exploration of rituals, mourning, and death on a Hutterite colony. Omega 69:357–379
Candy B, Jones L, Varagunam M et al (2012) Spiritual and religious intervention for well being of adults in terminal phase of disease. Cochrane Database Syst Rev (5):CD007544. doi:10.1002/14651858.CD007544.pub
Claessens P, Menten J, Shotsman P et al (2008) Palliative sedation: a review of the research literature. J Pain Symptom Manage 36:310–333
Cleese J. http://WWW.thejohncleese.com
Cobb M, Dowrick C, Lloyd Williams M (2012) What can we learn about the spiritual needs of palliative care patients from the research literature. J Pain Symptom Manage 43:1105–1119
Collier MJ, Hedge P, Lee N et al (2002) Dialogues on the edges: ferments in communication and culture. In: Collier MJ (ed) Transforming communication about culture. Sage, Thousand Oaks, pp 229–230
Collier A, Phillips JL, Iedema R (2015) The meaning of home at the end of life: a video-reflexive ethnography study. Pall Med 29:695–702
Cook D, Swinton M, Toledo F et al (2015) Personalizing death in the Intensive Care Unit: the three Wishes Project. Ann Intern Med 163:272–280
Crocker TF, Smith JK, Skevington SM (2015) Family and professionals underestimate quality of life across different cultures and health conditions: a systematic review. J Clin Epidemiol 68:584–595
Dahiva S, Ahluwalia MS, Walia HK (2013) Sleep disturbances in cancer patients: under recognized and undertreated. Cleve Clin J Med 80:722–732
Emanuel EJ, Fairclough DL, Wolfe P (1999–2004) Emanuel LL: talking to terminally ill patients and their caregivers about death, dying and Bereavement: Is it stressfull? Is it helpful? Arch Intern Med 2004:164
Fleming R, Kelly F, Stillfried G (2015) ‘I want to feel at home”: establishing what aspects of environmental design are important to people with dementia at the end of life. BMC Palliate Care. doi:10.1186/s12904-015-0026-y
Fukui S, Yoshiuchi K, Fjita J et al (2011) Japanese People’s preference for place of end-of life care and death: a Population-Based Nationwide Survey. J Pain Symptom Manage 42:882–892
Gent MJ, Fradsham S, Whyte T et al (2015) What influences attitudes toward clinically assisted hydration in the care of dying patients? A review of the literature. BMJ Supp Pall Care 5:223–231
Goldstein D, Thewes W, Butow P (2002) Communicating in a multicultural society: Greek communities attitudes toward cancer in Australia. Int Med J 32:289–296
Hales S, Zimmermann C, Rodin G (2010) Review: the quality of dying and death: a systematic review of measures. Palliat Med 24:127–144
Hales S, Gagliese L, Nissim R et al (2012) Understanding bereaved caregiver evaluation of dying and death: an application of cognitive interviewing methodology to the a quality of life and death questionnaire. J Pain Symptom Manage 195–204
Hawthorn M (2015) The importance of communication in sustaining hope at the end of life. Br J Nurs 24:702–705
Henson LA, Gao W, Higginson IJ et al (2015) Emergency department attendance by patients with cancer in their last months of life: a systematic review and meta-analysis. J Clin Oncol 33:370–376
Hermann CP, Looney SW (2011) Determinants of quality of life in patients near the end of life: a longitudinal perspective. Oncol Nursing Forum 38:23–31
Institute of Medicine (1997) Approaching death: improving care at the end of life. National Academy Press, Washington, DC
Jones JM, McPherson CJ, Zimmermann C et al (2011) Assessing agreement between terminally ill cancer patients’ reports of their quality of life and family caregiver and palliative care physician proxy rating. J Pain Symptom Manage 42:354–365
Kaspers PJ, Pasman HR, Onwuteaka-Phillipsen VD et al (2013) Changes over a decade in end of life and transfers during the last three months of life: a repeated survey among proxies of deceased older people. Palliat Med 27:544–552
Kim SS, Reed PJ, Hayward RD et al (2011) Spirituality and psychological well being: testing a theory of family interdependence among family caregivers and their elders. Res Nurs Health 34:103–115
Kirsten AT, Lars JD, Kari K et al (2014) The power of consoling presence: hospice nurses-lived experience with spiritual and existential care of the dying. BMC Nurs 13:25
LeBlanc TW, McNeil MJ, Kamal AH et al (2015) Polypharmacy in patients with advanced cancer and the role of medication discontinuation. Lancet Oncol 16:e333–e341
Lee C (2009) “Race” and “Ethnicity” in Biomedical research: how do scientists construct and explain differences in health? Soc Sci Med 68:1183–1190
Lee MR, Baek SK, Kim S et al (2013) Awareness of incurable cancer status and health-related quality of life among advanced cancer patients: a prospective cohort study. Pall Med 27:244–254
Luciani A, Jacobsen PB, Extermann E et al (2008) Fatigue and functional dependence in older cancer patients. Am J Clin Oncol 31:424–430
Maciejevsky PK, Prigerson HG (2013) Emotional numbness modifies the effect offend-of –life discussion and end-of –life care. J Pain Symptom Manage 45:841–847
Mack JW, Block SD, Nilsson M et al (2009) Measuring therapeutic alliances between oncologists and patients with advanced cancer: The Human Connection Scale. Cancer 115:3302–3311
Mack JW, Paulk ME, Viswanath K et al (2010) Racial disparities in outcome communication on medical care received near death. Arch Int Med 170:1533–1540
Mack JW, Cronin A, Keating NL et al (2012) Association between end-of-life discussion characteristic and care received near death: a prospective cohort study. J Clin Oncol 30:4387–4395
Martin JN, Nakayama TK (2013) Intercultural communication in contexts. McGraw Hill, Boston
McCreery E, Costello J (2013) providing nutritional support to patient with cancer cachexia. Int J Pall Nurs 19:32–37
Mehta RD, Roth AJ (2015) Psychiatric considerations in the oncology setting. CA Cancer J Phys 65:299–314
Melin-Johansson C, Odling G, Axelsson B et al (2008) The meaning of quality of life: narrations by patients with incurable cancer in palliative care home. Palli Support Care 6:231–238
Nowarska A (2015) Clinically assisted hydration and the liverpool care pathway: Catholic ethics and clinical evidence. J Med Ethics 41:645–649
Padela A, Mohiuddin A (2015) Ethical obligations and clinical goals in end-of-life care: deriving a quality of life construct based on the Islamic concept of accountability before God. Am J Bioeth 15:3–13
Papavasiliou ES, Brearley SG, Seymour EG et al (2014) From sedation to continuouis sedation until death: how has the conceptual life of sedation at the end of life changed over time? J Pain Symp Manage 47:891–706
Patient self-determination act 19090, 42 USC 1395 cc (a)
Peppercorn JM, Smith TJ, Helft PR et al (2011) American Society of Clinical Oncology. American Society of Clinical Oncology statement: toward individualized care for patients with advanced cancer. J Clin Oncol 29(6):755–760
Peteet JR, Balboni MR (2013) Spirituality and religion in oncology. CA Cancer J Clin 63:280–289
Pinquart M, Koch A, Eberhardt B et al (2006) Association of functional status and depressive symptoms with health-related quality of life in cancer patients. Qual Life Res 15:1565–1570
Prigerson HG, Bao Y, Shah M et al (2015) Chemotherapy use, performance status, and quality of life at the end of life. JAMA Oncol. doi:10.1001/jamaoncol.2015.2378
Prossr R, Korman D, Feinstein RA (2012) An orthodox perspective of the Jewish end-of-life experience. Home Healthc Nurse 30:579–585
Puchalski C, Ferrell B, Virani R et al (2009) Improving the quality of spiritual care as a dimension of palliative care: the report of the consensus conference. J Palliat Med 12:885–904
Putman MS, Yoon JD, Rasinsky KA et al (2013) Intentional Sedation to unconsciousness to the end of life: findings for a National Physician Survey. J Pain Symptom Manage 46:326–334
Roscoe L, Tullis J (2015) The meaning of everything: communication at the end of life. J Med Person 13:81–86
Rose JH, O’toole EE, Dawson NV et al (2000) Generalists and Oncologists show similar care practices and outcomes for hospitalized late-stage cancer patients. SUPPORT investigators. Study to understand Prognoses and preferences for Outcomes and Risks of Treatment. Med Care 38:1103–1118
Rosembaum L (2015) The paternalism preference-choosing unshared decision making. N Engl J Med 373:589–592
Schnipper LE, Davidson NE, Wollins DS et al (2015) American Society of Clinical Oncology statement: a Conceptual Framework to assess the value of cancer treatment options. J Clin Oncol 23:2563–2577
Searight HR, Gafford J (2005) Cultural diversity at the end of life: Issues and guidelines for family physicians. Am Fam Physician 71:515–522
Shah SK, Kaspar K, Millar FG (2015) A narrative review of the empirical evidence on public attitudes on brain death and vital organ transplantation: the need for better data to inform policy. J Med Ethics 41:291–296
Steinhauser KE, Christakis NA, Clipp EC et al (2000) Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 284:2476–2482
Stephenson PS, Berry DM (2015) Describing spirituality at the end of life. West J Nurs Res 27:1229–1247
Tang ST, Liu LN, Kin LC et al (2014) Trajectories of the multidimensional dying experience for terminally ill cancer patients. J Pain Symptom Manage 48:863–874
Temel JS, Greer JA, Adamane S et al (2011) Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of palliative therapy. J Clin Oncol 29:2319–2329
Temel J, Currow D, Fearon K et al (2014) Anamorelin for the treatment of cancer anorexia/cachexia in NSCLC. Results from the phase III studies Romana 1 and 2. Ann Oncol 25:1–41
Teno JM, Clarridg BR, Casey V et al (2004) Family perspective on end-of-life care at the last place of care. JAMA 292:88–93
Tomkins A, Duff J, Fitzgibbon A et al (2015) Controversies in faith and health care. Lancet pii: S0140-6736(15)60252-5. doi:10.1016/S0140-6736(15)60252-5
Van Laarhoven SW, Schilderman J, Verhagen CA et al (2012) Comparison of attitudes of guilt and forgiveness in cancer patients without evidence of disease and advanced cancer patients in a palliative care setting. Cancer Nurs 35:483–492
Veinante P, Yalcin I, Barrott M (2013) The Amygdala between sensations and affect: a role in pain. J Mol Psych. doi:10.1186/2049-9256-1-9
Wiffen PJ, Derry S, Moore RA (2014) Impact of morphine, fentanyl, oxycodone, or codein on patients’consciousness, appetite and thirst when used to treat cancer pain. Cochrane Database Syst Rev (5):CD011056. doi:10.1002/14651858.CD011056.pub2
Wittemberg E, Ferrell B, Goldsmith J et al (2015) Providers difficulties with spirituality and forgivness communication at the end of life. Am J Hosp Pall Care 2015. pii: 1049909115591811
Woodman C, Baillie J, Sivell S (2015) The preferences and perspectives of family caregivers toward the place of care for their relatives at the end of life. A systematic review and thematic synthesis of qualitative evidence. BMJ Supp Pall Care. pii: bmjspcare-2014-000794. doi:10.1136/bmjspcare-2014-000794
Wright AA, Zhang B, Ray A et al (2008) Associations between end of life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 30:1665–1673
Wright AA, Mack JW, Kritek PA et al (2010a) Influence of patients’ preferences and treatment site on cancer patients’ end-of-life care. Cancer 116:4656–4663
Wright AA, Keating NL, Balboni TA et al (2010b) Place of death: correlations with quality of life of patients with cancer and predictors of bereaved Caregivers’ Mental Health. J Clin Oncol 28:4457–4464
Wright AA, Stieglitz H, Kupersztoch YM et al (2013) United States acculturation and cancer patients end of life care PLoS One 8(3):e58663. doi:10.1371/journal.pone.0058663. Epub 2013 Mar 11
Zhang B, Nilsson ME, Prigerson HG (2012) Factors important to patient’s quality of life and the end of life. Arch Intern Med 172:1133–1142
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2017 Springer International Publishing Switzerland
About this chapter
Cite this chapter
Balducci, L., Innocenti, M. (2017). Quality of Life at the End of Life. In: Berk, L. (eds) Dying and Death in Oncology. Springer, Cham. https://doi.org/10.1007/978-3-319-41861-2_4
Download citation
DOI: https://doi.org/10.1007/978-3-319-41861-2_4
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-41859-9
Online ISBN: 978-3-319-41861-2
eBook Packages: MedicineMedicine (R0)